Connect with other families, find emotional support, and get resources made just for family caregivers and brothers and sisters.
Federation for Children with Special Needs - Connects support parents with caregivers
Educational materials, blogs, videos from parents, and training series
Hub for family support services, trainings, mentoring, and flexible funding
Support workshops for siblings of children with disabilities and health concerns
Partner site with Courageous Parents Network for neurological conditions
Find local and online support groups for various conditions and situations
Small Miracles in Life Exist - Non-profit helping families with disabled children/adults enjoy education, vacation, and recreation experiences
Get help with the school system. Find resources for early help, special education services, and planning for the future from birth to adulthood.
Support services for infants and toddlers with developmental delays
Early childhood education resources and programs
Special education resources for young children
Comprehensive guide to special education in Massachusetts
Planning for post-secondary education and careers
Recreational activities, support groups, and assistance for special needs families
Get healthcare services, understand insurance choices, and find special medical care for complex conditions.
Specialized pediatric rehabilitation and complex care services
Pediatric rehabilitation hospital in Canton, MA specializing in complex medical conditions
Comprehensive pediatric healthcare services and specialized care for children with complex medical needs
Find licensed nursing agencies in Massachusetts
Early intervention and support for young children with special healthcare needs
$1,000 grants for speech and language therapy for ages 3-22
Executive office overseeing health and human services programs
Massachusetts public health programs and services
Genetic testing and counseling services
National Human Genome Research Institute resources
Home healthcare advocacy and resources
State home care services and support
Comprehensive inpatient and outpatient rehabilitation services for children with disabilities and injuries
Leading rehabilitation hospital system providing inpatient and outpatient services for adults and children
Multiple locations across Massachusetts offering specialized rehabilitation services
State Medicaid program providing comprehensive health coverage for children and families
Secondary insurance for families with private insurance who need additional coverage for disability-related services
Federal program providing health coverage to eligible children in families with incomes too high to qualify for Medicaid
Information for families with children who qualify for both Medicare and Medicaid benefits
Family Voices comprehensive guide explaining insurance basics, primary vs secondary coverage, and benefits for children with complex medical needs
Federal guide explaining how primary and secondary insurance work together to cover medical expenses
Boston Children's Hospital guide to understanding deductibles, copays, out-of-network costs, and coordination of benefits
Official federal resource explaining Medicaid eligibility requirements and application processes for families
Federation for Children with Special Needs practical guide to understanding and using insurance for special needs families
Official SSA guide to SSI and Social Security Disability benefits available for children with qualifying conditions
Comprehensive guide to Home and Community-Based Services waivers that provide additional support for children with disabilities
Understanding charity care, payment plans, and financial assistance available at hospitals and healthcare facilities
Government tool to find federal, state, and local benefits and assistance programs for people with disabilities
Comprehensive resource listing various programs that help families pay medical bills and reduce healthcare costs
Step-by-step guide to managing medical debt, negotiating bills, and finding financial assistance programs
NORD resource explaining financial assistance specifically available for families dealing with rare and complex medical conditions
Step-by-step guide to appealing denied insurance claims and coverage decisions
Official Massachusetts process for appealing MassHealth decisions and requesting fair hearings
Understanding your right to independent external medical review for denied treatments
Kaiser Family Foundation guide to claims denials and appeals in ACA marketplace plans
Personalized support and advocacy for families navigating healthcare systems and prior authorization
Official guidance on MassHealth prior authorization requirements and processes
Family Voices guide to understanding insurance benefits for children with special health care needs
Early and Periodic Screening, Diagnostic and Treatment benefits under Medicaid for children
Official federal marketplace help center for enrollment, coverage questions, and support
National directory of state programs that help with insurance questions and problems
Massachusetts organization providing free health insurance consumer assistance and advocacy
Educational resources and tools for understanding health insurance and patient rights
Official SSA information on qualifying for disability benefits including SSI for children
Medicaid waiver programs providing services in home and community settings
Federal program helping families find free and low-cost health insurance for children
Understanding Medicare's coverage determination process for medical equipment and services
Massachusetts Early Intervention waiver providing home and community-based services for children with complex medical needs who would otherwise require institutional care
Find money help, grants, and programs to pay for medical costs and family needs.
Supplemental Security Income for disabled children and adults
Financial assistance for medical equipment and modifications
Financial assistance ($100-$2500) for medical expenses, bills, and family support
Grants ($600-$2500) for medical equipment, therapy, and healthcare needs
Disease-specific funding for children 18 and under with chronic conditions
$500 grants for medical equipment for children under 21 with disabilities
Support and resources for families with special needs children
Military family resources and support services
Mental health and behavior resources for children and adults with complex medical needs and their families.
Children's services, family support, and comprehensive mental health programs
24/7 crisis support and mental health assistance (1-833-773-2445)
State Medicaid coverage for mental health and behavioral services
Comprehensive services for children with complex behavioral health needs
Comprehensive pediatric psychiatry and behavioral health services
Pediatric psychiatric services and mental health treatment
Specialized psychiatric care for children and adolescents
Community-based pediatric behavioral health services
Autism advocacy, support, and behavioral resources
In-home ABA therapy services in Massachusetts for autism communication and behavioral support
Professional organization for applied behavior analysis
State mental health program coordination and resources
Positive behavioral interventions and support strategies
Educational and behavioral support for children with behavioral challenges
24/7 crisis support and suicide prevention hotline
Text HOME to 741741 for free crisis counseling
Mental health advocacy, education, and support groups
Trauma-informed care resources and treatment approaches
State resources for trauma-informed approaches to care
Federal agency providing mental health and substance abuse resources
Mental health advocacy and support for families
Family-driven organization for children's mental health advocacy
Resources focused on transition planning, independent living, and community engagement for young people with disabilities.
Transition resources for young adults moving from pediatric care
Healthcare transition resources and planning tools
Comprehensive residential and day programs for young adults
Residential support for individuals with disabilities and mental health conditions
Resources for specific medical conditions and specialized support needs.
Support and resources for Hypoxic Ischemic Encephalopathy
National Institute of Health information on Hypoxic Ischemic Encephalopathy
Information on epilepsy related to Hypoxic Ischemic Encephalopathy
National organization providing resources and support for cerebral palsy
National advocacy and support organization for people with disabilities
State organization providing services and support in Massachusetts
National organization for Cornelia de Lange Syndrome support and research
Local and state support coordinators for Cornelia de Lange Syndrome
National organization for Mucopolysaccharidoses and related diseases
Regional and state chapters providing local support
National foundation supporting leukodystrophy research and families
National epilepsy advocacy and support organization
State organization providing epilepsy support and resources
National organization for myotonic dystrophy support and research
Local and regional support groups for myotonic dystrophy
National organization supporting muscle disease research and care
Find your local MDA office for regional support and services
Legal assistance and advocacy resources for families navigating disability rights and services.
Comprehensive collection of books, literature, and research materials to support understanding of medical complexity and disability.
Curated collection of books for families, professionals, and siblings dealing with medical complexity
Books for families, medical care resources, and adaptive equipment with affiliate links
Children's books about grief, loss, inclusion, and finding your place in the world
Practical guides for parents navigating challenges of raising children with disabilities
Resources specifically designed to help siblings understand and cope with having a brother or sister with special needs
Compassionate guides for families dealing with loss and emotional challenges
Search medical research databases for evidence-based information on conditions and treatments
Direct access to the National Library of Medicine's biomedical literature database
High-quality, evidence-based systematic reviews and clinical trials
Evidence-based clinical decision support resource for healthcare professionals
Research and information on rare diseases and conditions
Research and information on neurological conditions from the NIH
Research and resources from the Centers for Disease Control and Prevention
Professional guidelines, research, and resources for pediatric care
International journal focusing on pediatric neurology and developmental medicine
Latest research publications in pediatric medicine and related fields
Professional resource for understanding and improving healthcare systems for medically complex children
Comprehensive guide for families and healthcare providers caring for children with complex neurological conditions
Research on care coordination models and best practices for medically complex populations
Studies and assessments focused on quality of life measures for children with disabilities and their families
Practical tools, guides, and resources to help navigate daily challenges and improve quality of life.
Can't find what you're looking for? Our team is here to provide personalized assistance and connect you with the right resources for your specific needs.